Well my little man is back in the ICU. We came to St. Luke's this morning to hopefully get Titus on track for normal growth and development. After months of specialist visit after specialist visit, Dr. Beck was finally able to pinpoint the main problems, all of which were in his throat and nose.
(For more detailed info scroll down to the post right below this one)
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| After |
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| Before |
A major part of today's procedure was to open up Titus pharynx as it was abnormally small. To the right is a before and after picture. Can. You. Believe. It?! Look at how tiny that hole was before the surgery today. No wonder the kid sounds so raspy, it's a wonder he was even able to breath.
The surgery went very well and was surprisingly quick. The recovery on the other hand has been a bit of an uphill climb. He was in recovery for about 3 hours longer than expected due to the fact that he was gradually sounding worse and worse and we weren't able to get his breathing under control for a while. His oxygen saturation should be at 90% at the lowest and his was dipping right around 87%. Titus was scheduled to have one oxygen treatment and ended up having one every hour for four hours. Naturally the staff wasn't comfortable sending him anywhere but the Pediatric Intensive Care unit for the night.
So here we are. Titus is doing ok. I can tell he is very uncomfortable and in a bit of pain, but they are staying on top of his meds and those are thankfully relieving him , even if only briefly, and he is usually able to fall asleep for 20 to 30 minutes at a time. It took him quite a while to get up the energy to eat but he seems to be eating normally now and is keeping it all down. He goes in spurts, he'll sound a little better then a little worse. He'll seem comfortable then have a coughing spell but overall he is much improved since recovery this morning. We'll be here tonight and all day tomorrow and may even have to stay tomorrow night but we will see. Even though it's scary and hard being back in the intensive care unit, I know its the best place for Titus to be. He's a trooper and such a brave little boy. Thanks for all the love and prayers! I'll continue to keep you updated.
So here we are. Titus is doing ok. I can tell he is very uncomfortable and in a bit of pain, but they are staying on top of his meds and those are thankfully relieving him , even if only briefly, and he is usually able to fall asleep for 20 to 30 minutes at a time. It took him quite a while to get up the energy to eat but he seems to be eating normally now and is keeping it all down. He goes in spurts, he'll sound a little better then a little worse. He'll seem comfortable then have a coughing spell but overall he is much improved since recovery this morning. We'll be here tonight and all day tomorrow and may even have to stay tomorrow night but we will see. Even though it's scary and hard being back in the intensive care unit, I know its the best place for Titus to be. He's a trooper and such a brave little boy. Thanks for all the love and prayers! I'll continue to keep you updated.
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